EURORDIS-Rare Diseases Europe, known as EURORDIS, is a non-governmental, patient-driven alliance of patient organisations and individuals active in the field of rare diseases. It promotes research on rare diseases and the commercial development of orphan drugs, and it works to improve the quality of life of people living with rare diseases in Europe. It was founded in 1997 and is supported by its members, the French Muscular Dystrophy Association, the European Commission, corporate foundations and the health industry. It represents more than 960 rare disease organisations in 63 countries and was the founding partner and lead coordinator of Rare Disease Day, first held in 2008.
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Founding Year Public or Private Still Operating In the Other Atlases
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Source Research Organization Registry (ROR): Research Organization Registry record for European Organisation for Rare Diseaseslocations, geonames_details nameQuote, locations, geonames_details name
"name": "Paris"
Sources
1. European Organisation for Rare Diseases (Wikipedia)
Lead
EURORDIS-Rare Diseases Europe (EURORDIS) is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases that promotes research on rare diseases and commercial development of orphan drugs.
Lead section
It was founded in 1997
View the Source2. Research Organization Registry: ROR record for European Organisation for Rare Diseases
Research Organization RegistryROR record statusQuote, ROR record status
"value": "European Organisation for Rare Diseases" ... "status": "active"
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